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Table 1 Terminology used in the MAPP Research Network to described disorders under study

From: The MAPP research network: design, patient characterization and operations

Term

MAPP Network Research Definition

Urologic chronic pelvic pain syndrome (UCPPS)

General term to describe idiopathic chronic pelvic pain of urologic origin in men or women. In MAPP Network studies, this includes men and women with IC/BPS, or men with CP/CPPS (see below).

Interstitial cystitis/bladder pain syndrome (IC/BPS)

Chronic unpleasant sensation (pain, pressure, discomfort) perceived to be related to the urinary bladder, associated with lower urinary tract symptoms, in the absence of infection or other identifiable causes.

Chronic prostatitis/chronic pelvic pain syndrome (CP/CPPS)

Chronic idiopathic pelvic pain or discomfort in males, commonly in the perineum, suprapubic region, penis, or testicles, which is often exacerbated by ejaculation or urination.

Non-Urologic Associated Syndromes (NUAS)

General term used to describe symptom-based non-urologic syndromes which co-occur with UCPPS at a rate greater than observed in the general population. Within the MAPP Network, initial efforts have focused on studying specific NUAS (fibromyalgia, irritable bowel syndrome, chronic fatigue syndrome), though other examples exist (e.g. vulvodynia, temperomandibular joint disorder, and migraine headaches, among others).