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Table 4 Description of data collection instruments

From: A prospective observational cohort study of posterior tibial nerve stimulation in patients with multiple sclerosis: design and methods

 

Name

Description

Urinary Measures

3-day Voiding Diary

Patient completed 3 day assessment of fluid intake, output, incontinence episodes and pad changes.

American Urological Association Symptom Score (AUA-SS)

Validated symptom score for the evaluation of Lower Urinary Tract Symptoms in Benign Prostatic Hyperplasia. Has been used in MS related research in the past.

Michigan Incontinence Symptom Score (M-ISI)

Validated score developed to discern between type of incontinence and the severity and bother caused by urinary incontinence

Neurogenic Bladder Symptom Score (NBSS)

Objective and validated assessment of bladder symptoms specifically created for use in patients with neurogenic bladder

Bowel and Sexual Measures

Sexual Satisfaction Scale

Validated, 5 item index addressing overall sexual adjustment in patients with MS and was adapted by the MSQLI from the Sexual History Form, scores range from 4 to 24 with higher scores indicating greater problems with sexual satisfaction.

Bowel Control Scale

validated, 5 item scale evaluating constipation, bowel accidents, bowel urgency and the impact of bowel symptoms of lifestyle on a 25 point scale with higher scores indicating greater bowel problems

General HRQOL

SF-12

Validated 12 item quality of life survey for use in patients with chronic conditions.

MS Impact

Expanded Disability Scale

Physician Completed assessment of impact of MS

  1. HRQOL Health Related Quality of Life. MS Multiple Sclerosis