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Table 3 Description of studies: Author, year, country, condition, age, number of participants (number of men), aim, data collection, methodology, recruitment context, assessment of relevance and quality

From: A meta-ethnography to understand the experience of living with urinary incontinence: ‘is it just part and parcel of life?’

Author & Year

Geography

Condition

Age

Number (male)

Aim to explore:

Data collection, methodology

Recruitment

Relevance

Assessment

1. Andersson et al. 2008 [116]

Sweden

UI

66–89

11

Experience of UI among women who do not desire further treatment

Interviews,

Phenomenology

District nurse

direct

satisfactory

2. Andersson et al. 2009 [117]

Sweden

UI

30 80+

14

Experience of UI among Syrian women living in Sweden

Focus groups,

Phenomenology

Snowball sample

direct

satisfactory

3. Ashworth & Hagan 1993 [118]

UK

UI

25–55

28

Women’s’ experience of UI

Interviews,

Phenomenology

newspaper

direct

key

4. Cochran 1998 [119]

USA

UI

60–88

19 (NK)

Experience of UI of older persons living in the community

Interviews,

Not stated

Community volunteer/doctor invite

direct

satisfactory

5. Doshani et al. 2007 [120]

UK

UI

36–82

24

Experience of UI among south Asian Indian women in Leicester, UK

Focus groups,

Thematic analysis

South Asian community centres

direct

satisfactory

6. Dowd 1991 [121]

USA

UI

58–79

7

Experience of UI and adjustment in older women

Interviews,

Grounded theory

‘convenience sample’

direct

satisfactory

7. Getliffe et al. 2007 [122]

UK

UI

29–89

99

Experience of using absorbent products for ‘light’ UI and impact on women’s quality of life

Interviews,

Thematic analysis

Incontinence services, consumer organisations and adverts

indirect#

satisfactory

8. Gjerde et al. 2013 [123]

Ethiopia

UI

NK

181

Experience of UI in rural and semi urban settings in Ethiopia

Interviews,

Systematic text condensation

part of a Incontinence and Prolapse study.

direct

satisfactory

9. Griffiths et al. 2009 [124]

UK

UI

30–74

22

Experience of physiotherapy sessions for the management of UI

Interviews,

Thematic analysis

Embedded in a trial

direct

satisfactory

10. Hägglund & Wadesten [125]

Sweden

UI

34–52

14

Experience of UI

Interviews,

Phenomenology

Cohort study; women who had not sought help

direct

satisfactory

11. Hägglund & Ahlström 2007 [126]

Sweden

UI

37–52

13

Experience of UI and health seeking in long-term UI

Interviews,

Phenomenology

Cohort study; women who had sought help for UI

direct

satisfactory

12. Hamid et al. 2015 [127]

Iran

UI

52–68

17

Experience of Muslim community-dwelling postmenopausal women of UI

Interviews,

Phenomenology

Community snowball sample

direct

satisfactory

13. Hayder & Schnepp a 2010 [128]

Germany

UI

38–83

32 (10)

Experience of UI in daily life

Interviews,

Grounded theory

Community advert

direct

key

14. Haydera 2012 [129]

Germany

UI

38–83

32 (10)

Experience of UI and impact on sexuality and intimate relationships

Interviews,

Community advert

direct

satisfactory

15. Higa et al. 2011 [130]

Brazil

UI

30–45

8

the meanings of silence for Brazilian women with UI

Interviews,

Content analysis,

Community snowball sample

direct

satisfactory

16. Horrocks et al. 2004 [131]

UK

UI

66–94

20 (9)

Why older people living in the community do not seek help with UI

Interviews,

Grounded theory

Community survey

partial*

satisfactory

17. Jackson et al. 2012 [132]

USA

UI

NK

144 (71)

How talking with others influences symptom management

Interviews, Thematic analysis

Community survey

direct

satisfactory

18. Kao et al. 2015 [133]

Taiwan

UI

44–66

12

Experiences of PFMT for UI and the impact on their sexuality

Interviews,

Thematic analysis

Women who had gone to a PFMT education programme

indirect

satisfactory

19. Komorowski & Chen 2006 [134]

China

UI

24–81

15

Experiences of Chinese women living with UI

Interviews,

IPA

Reported UK at Obstetrics and gynaecology department

direct

satisfactory

20. Li, Low & Lee 2007 [135]

Hong Kong

UI

42–77

9

Community-dwelling women’s experiences in coping with UI

Interviews

Content analysis

Continence clinic (stress incontinence)

direct

satisfactory

21. Macinnes 2008 [136]

UK

UI

28–65

12

To explore why some women with UI drop out of healthcare

Telephone interviews,

Thematic analysis

Continence clinic (stress incontinence)

direct

satisfactory

22. Mason et al.b 1999 [137]

Australia

UI

21–45

52

The effects of stress incontinence on women in their childbearing years

Interviews,

Thematic analysis

One year post-partum with UI

partial

satisfactory

23. Mason et al. b2001 [138]

Australia

UI

21–45

52

are women made aware of UI at the time of childbirth and why some do not seek help

Interviews,

Thematic analysis

One year post-partum with UI

partial

satisfactory

24. Milne 2006 [139]

Canada

UI

24–86

38 (5)

Self-care strategies in UI and factors that influence their self-care choices

15 interviews/3 focus groups description

Adverts in health clinics, newspapers, health education sessions, clinics

direct

satisfactory

25. Nicolson et al. 2008 [140]

UK

OAB

51–85

18 (8)

Experiences of overactive bladder symptoms

Interviews/focus groups,

Thematic analysis

Primary care, adverts

direct

satisfactory

26. Peake & Mandersonc 2003 [141]

Australia

UI

40–60

75

Social aspects of UI in women in their middle years.

Interviews,

Thematic analysis

Primary care

direct

key

27. Peake, Manderson & Pottsc 1999 [142]

Australia

UI

40–60

75

Women’s discourse regarding theirown UI

Interviews,

Thematic analysis

Primary care

direct

key

28. Roos et al. 2014 [143]

Netherlands

POP/UI

31–64

37

Impact of pelvic organ prolapse and/or UI on sexual dysfunction

Interviews,

Thematic analysis

Scheduled for corrective surgery

indirect

satisfactory

29. Sange et al. 2008 [144]

UK

UI

21–70

9

Religious/cultural influences on help-seeking in south Asian Muslim women

Focus groups,

Framework analysis

Language classes

direct

satisfactory

30. Shaw et al. 2001 [145]

Australia

UI

40–63

31 (8)

Help seeking behaviour in people with UI and barriers to service use

Interviews

Thematic analysis

Embedded in a continence service trial

indirect

satisfactory

31. Shaw et al. 2008 [146]

UK

UI

41–89

33 (18)

help-seeking in middle and older aged people with UI

Interviews

Grounded theory

Community survey

direct

satisfactory

32. Shaw, William & Assassa 2000 [147]

Australia

UI

40–62

23 (7)

Patients’ views of a new nurse led continence service in a randomized trial

Interviews

Thematic analysis

Post course led by continence nurse

direct

satisfactory

33. Siu 2014 [148]d

Hong Kong

OAB

21–59

30

Doctor-patient communication (female patients and male urologists)

Interviews

Thematic analysis

OAB patient self-help group

direct

satisfactory

34. Siu 2015 [149]d

Hong Kong

OAB

21–59

30

Reasons behind doctor shopping behaviour in patients with overactive bladder

Interviews

Thematic analysis

OAB patient self-help group

direct

satisfactory

35. Skoner & Haylor 1993 [150]

USA

UI

31–50

8

Perceptions of UI

Interviews

Grounded theory

Women’s’ magazines or snowball sample

direct

satisfactory

36. St John, James & Mckenzie 2002 [151]

Australia

UI

40–66

11 (5)

Perspectives of a service for community dwelling people with UI

Interviews

Thematic analysis

Community health, continence service, home visits

direct

satisfactory

37. van Den Muijsenbergh & Lagro-Janssen 2006 [152]

Netherlands

UI

45 MEAN

30

The impact of UI on Moroccan and Turkish women and their treatment preferences

Interviews

Thematic analysis

Primary care, pelvic floor physio, Moroccan care consultants

direct

satisfactory

38. Welch et al. e 2012 [153]

USA

LUTS

34–85

90 (49)

qualitative methods for developing patient-reported outcomes

Interviews

Thematic analysis

Community survey

indirect

satisfactory

39. Welch, Taubenberger & Tennstedte 2011 [154]

USA

LUTS

34–85

90 (49)

Treatment seeking for lower urinary tract symptoms

Interviews

Thematic analysis

Community survey

indirect

satisfactory

40. Wilkinson 2001 [155]

Australia

UI

40–64

6

Experiences of Pakistani women with UI

Interviews

Thematic analysis

Continence service

direct

satisfactory

41. Zeznock, Gilje & Bradway 2009 [156]

Alaska

UI

33–86

17

Experiences of Alaskan women living with UI in rural/urban settings

Interviews

Thematic analysis

Urological, women’s health and primary care

direct

satisfactory

  1. OAB overactive bladder, POP pelvic organ prolapse, LUTS lower urinary tract infection, IPA interpretative phenomenological analysis
  2. 1 5/18 constant UI from obstetric fistula, others had mild to continuous leakage; *2 men had permanent indwelling catheters; # 16/99 linked to other conditions
  3. a,b,c,d,e themes drawn from a single cohort in these studies